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Too important not to know about

(45 posts)
  • Started 3 years ago by Instinct
  • Latest reply from rainingwolf
  1. This is the only post I will do. I am not going to reply to any comments. No, I have not 'returned'. I just thought that since everyone's health is important to them that you might want to know what is being stuck into the stimulus package.

    http://www.bloomberg.com/apps/news?pid=20601039&refer=columnist_mccaughey&sid=aLzfDxfbwhzs

    Here is an excerpt:

    Hospitals and doctors that are not “meaningful users” of the new system will face penalties. “Meaningful user” isn’t defined in the bill. That will be left to the HHS secretary, who will be empowered to impose “more stringent measures of meaningful use over time” (511, 518, 540-541)

    What penalties will deter your doctor from going beyond the electronically delivered protocols when your condition is atypical or you need an experimental treatment? The vagueness is intentional. In his book, Daschle proposed an appointed body with vast powers to make the “tough” decisions elected politicians won’t make.

    The stimulus bill does that, and calls it the Federal Coordinating Council for Comparative Effectiveness Research (190-192). The goal, Daschle’s book explained, is to slow the development and use of new medications and technologies because they are driving up costs. He praises Europeans for being more willing to accept “hopeless diagnoses” and “forgo experimental treatments,” and he chastises Americans for expecting too much from the health-care system.

    Daschle says health-care reform “will not be pain free.” Seniors should be more accepting of the conditions that come with age instead of treating them. That means the elderly will bear the brunt.

    Posted 3 years ago by Instinct #

  2. And the disabled like me and my husband-he has congestive heart failure and may need a transplant eventually and I am in a wheelchair and on a ventilator full time due to polio--we have both worked hard all our lives but now that we cant society treats us as disposable. This comes as no surprise. Thanks for the info, Instinct--I can guarantee we wont go quietly!

    Posted 3 years ago by rainingwolf #

  3. OK, one reply

    Not society, Rainingwolf. I don't know anyone who, if asked, would say that someone was disposable. This is the government. A government that has decided that they know better than we do what we need, and how we should live.

    Posted 3 years ago by Instinct #

  4. OK-you are right-most folks are good-especially you, Instinct. Though when our disability group asked the March of Dimes for research into post-polio syndrome we were essentially told no money would be put into it because polio isnt a problem any more and we would all die off eventually so there was no need to worry . PPS is when those who had polio recover-like I could walk, run, etc.-for 40 years-then PPS hit and I am back in a chair and on a vent. So Maybe it is the government and organizations that have no compassion. At any rate, I am too damn stubborn to give in, so you can bet I will fight!

    Posted 3 years ago by rainingwolf #

  5. This made the hairs on the back of my neck raise up. I read too much SF, I guess. What was the name of that movie with Charles Heston? Had the green stuff in it?

    Posted 3 years ago by paulajeanne #

  6. Definitely the system needs reform and it's going to be difficult. From a health care providers point of view I see a lot of doctors provide futile ICU level care to pt with hopeless diagnosis and dire prognosis who they themselves do not want to undergo. But because the doctor is afraid that if he discontinues care at any point(even at the request of the pt and family) that they will later decide to sue him. There is so much defensive medicine being practiced now and it's not necessarily good medicine.I know that there will be some health care rationing and I hope it will be mostly applied to these cases where there are extreme levels of care to patients with dismal diagnoses and not just the elderly because there are many illnesses they the elderly get although chronic they are fairly easily treated,like pneumonia or CHF.
    There is already rationing as people who can't pay can't get care and the system is broken and needs to be fixed.It may be rough for a while.
    We will have to keep our eyes open and advocate for those less able. I personally would like to see the elderly assisted in navigating the health care system without being institutionalized. I would love for more to be helped and not lose their homes and everything. I think that our society treats the elderly like rubbish and that needs to change,like the elderly veteran who was living in his home at 93 in Chicago,I believe, and his power was cut due to non payment in a snow storm,he froze.
    I know from care taking my own parents that they are easily confused by how many doctors to see,where and so on. I have prevented my parents from med errors made by careless doctors who wrote duplicate orders or meds that would have had serious interactions with the ones they were on. I wonder how those living without similar help do and I'm afraid that they probably do not live as long.
    There are a lot of things to fix in the health care system.
    Thanks for the heads up Instinct.
    I hope my response isn't too controversial,I'm just stating my opinion.

    Posted 3 years ago by Buttercup #

  7. I do not(at least hope not) think that they are referring to people who are functional with disabilities like you Ginger. I also have a disability from my major depression but I am certainly functional. Not treating people who are functional and easily treated would be unconscionable.

    Posted 3 years ago by Buttercup #

  8. Victor and I both have Advanced Directives and have made each other the decision maker for care. Obviously if I am brain dead but still breathing I want to be let go--as does he. But as long as mind is still clear and working, I am THERE no matter what state my body is in, and I'll bit*h slap anyone who tries to pull the plug! I've posted Instinct's URL to my disability advocate group. See if we can stir up some trouble!

    Posted 3 years ago by rainingwolf #

  9. I do agree with what you said about functionality, BC--my comment wasnt directed at your post.

    Posted 3 years ago by rainingwolf #

  10. I love your spirit Ginger,your wishes and anyone with an advance directive should be respected.

    Posted 3 years ago by Buttercup #

  11. I simply look at it this way, the Constitution says, very clearly, what the Federal government is allowed to do by law. It also states that any power not directly given to the federal government does not belong to them.

    There is not one part of the Constitution that says "Control our health care options". Sure there are problems with the system, but do you really think that the Feds will clean it up?

    OK, so that's my third and final reply on this. I am now going back to my regular life. Take it easy.

    Posted 3 years ago by Instinct #

  12. Buttercup:
    You are so right about wondering how those without help and advocates manage the rat's maze confusion of the medical system and all its paperwork and how badly and sadly it negatively affects their care, health, and quality of life. I truly believe my parents would have died years earlier, in poverty, no longer in their own home had I not been able to help out. Yet I often felt so helpless and angry to get so many screw ups by the health care system, especially in hospitals, straightened out and prevented. It is disturbing to know I will be on my own with no one there for me when I get older.

    Rainingwolf:
    God love you, may you prevail. I find it sickening to hear that even the March of Dimes doesn't care about PPS and won't fund any research into alleviating the affects for those of you who fought your way back once already.

    Instinct:
    Thank you for this heads up. I'm not surprised to see what is coming our way, only profoundly worried.

    Posted 3 years ago by Marnet #

  13. I'm not thinking the Feds will do much good but as it is it is collapsing around us due to hospitals closing due to $$ problems and super crowded over burdened ERs are near the breaking point. I don't know what the answer is but I think there's going to be a lot of change and it might be pretty scary.
    I'm fading fast,I can't even type anymore <goodnight>
    Thanks for bring this up Instinct.

    Posted 3 years ago by Buttercup #

  14. Paulajean-I think the movie you were thinking of was "Soylent Green"--scary!

    Posted 3 years ago by rainingwolf #

  15. Buttercup, you are right and not your response isn't too controversial.

    The health care system scares the daylights out of me, sigh.

    Posted 3 years ago by AZDEBRA 5/27 & crew #

  16. Instinct:
    Unfortunately the federal government has taken unto itself all sorts of control beyond what the Constitution set forth and I expect it will continue to exert increasing strangle hold on every little aspect of our lives. For that matter, so do some local gov'ts. After all, having successfully dictated transfats allowed in NY restaurants, now they want to dictate how much salt chefs can use in cooking. sigh

    Posted 3 years ago by Marnet #

  17. *bump*

    Posted 3 years ago by JoanfromNewJersey #

  18. Somehow I suspect that Daschle doesn't mean that he or anyone he cares about should "be more accepting of the conditions that come with age".

    Posted 3 years ago by Kilroy #

  19. I am afraid that this will only compound the problem of a physician and nurse shortage. It has been bad enough to have the ability to provide patient care dictated by insurance companies. But to have the federal government involved will, I know, drive health care providers away.

    I have read that hospices are going to have budgets slashed under the "vision" for reformed health care. Having been a program director for a hospice, as well as a hospice nurse, this is grim news. Hospices already operate on a shoe string and yet are mandated under Medicare to provide a high level of service.

    This is terrible news all the way around, really.

    Posted 3 years ago by WillowandWindismom #

  20. Doctors are so fed up that some are revolting and taking matters into their own hands. A group of doctors in the D/FW area are now charging $1500.00 PER PERSON, PER YEAR (plus the cost of their insurance) for a family to be on their list of 100 or so total patients that they each see. The people who can afford this luxury will have the doctor's cell phone number, get extra tests that the insurance co. normally doesn't pay for, and be able to spend 'quality time' with their doctor. So, doctors are dropping patients that have been with them for years because they're not the first to sign up or can't afford this. Sad, huh?

    Posted 3 years ago by FondaHonda #

  21. Beyond sad - could be catastrophic if that were to become a trend. There are already a lot of doctors refusing to accept Medicare any longer. Few people these days can pay for health insurance and then pay some "exclusive" coverage fee to a physician.

    Posted 3 years ago by WillowandWindismom #

  22. Well the Senate passed the bill today
    http://news.yahoo.com/s/ap/20090210/ap_on_go_co/congress_stimulus
    There will still be talks between the House and the Senate to reconcile their differences.
    I'm sorry, but this is far too much of an intrusion into our lives.

    Posted 3 years ago by MeezerMama in OK; 10/23 #

  23. Yes it's awful,the doctors are upset with the multiple insurance co/HMOs where MBAs are telling them how to practice medicine and they are not accepting any insurance. Also this business of "never events" where medicare does not pay if something that shouldn't happen happens. I agree with this when it refers to wrong site surgery and the like but they are generalizing it to refer to things that they would like not to happen like UTIs or bedsores all the time while cutting back on essential staff who could actually work to prevent these things.
    We(health care providers) see and know what we have to do but our hands are tied because of how it's set up now.
    It's not good now and it's not going to be good for a while I'm afraid.
    BTW FH that type of doctor is practicing what is referred to as concierge medicine

    Posted 3 years ago by Buttercup #

  24. The only hope left is that the Senate and House will be unable to agree on a compromise. That could very well happen--the Senate had to include mandated spending cuts for entities that accept bailout money in order to get the necessary three Republicans to vote for the bill in order to pass. Senate Majority Leader Reid said that if the House doesn't include the spending reduction mandate, the compromise bill will most likely not pass.

    SanFranNan(cy Pelosi, House Speaker)'s reply? "That's not my problem."

    Posted 3 years ago by gatakitty #

  25. Someone needs to put Ms. Pelosi in her place. I suppose that person would be the President, but he doesn't seem to be willing or able to get her under control. Really, the woman is acting like a child. (We won, Na-Na-Na-Boo-Boo)

    Posted 3 years ago by NNGM #

  26. I agree Nancy Pelosi is a humongous disappointment.
    Get her Obama!

    Posted 3 years ago by Buttercup #

  27. Instict, good to see you and thank you for putting this out and those that responded. As an older american with no health insurance, I am scared that I won't get the help I need. My other half is struggling to pay her cobra. It is almost $600 per month and she makes $1000 in social security. Not much left. Should I die, she will most certainly do the same. Something is wrong here. I am glad to have seen you. Mama Lynn

    Posted 3 years ago by Lynn from PA 6/8 #

  28. Obama has supported Pelosi.

    Big Brother is moving in to take over and think for us.

    Posted 3 years ago by SoxsMom #

  29. bump

    Posted 3 years ago by AZDEBRA 5/27 & crew #

  30. Here it is on Yahoo:

    http://news.yahoo.com/s/ap/20090210/ap_on_he_me/med_medicare_disappointment_3

    Note the laments about the difficulty of getting doctors to change their ways and take directions from people with less education than they have, who have never laid eyes on any of their patients.

    Also makes you wonder if Daschle's tax problems are the only reason he withdrew from his nomination.

    Posted 3 years ago by Leeny #


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