Daily Kitten Chat Forum » Purrs

1. 

   and with those words my heart and stomach crashed to the floor. I was absolutely devastated.

   Please, put down the whack bonk sticks, we will stand down at the moment. The NS was LIVID that his office did not get me in FIRST THING Monday morning. He got more than two earfuls from me about his staff. As suspected, he did NOT get my messages or the seriousness of my situation until the ER Doc called him. He commended me on my stubborness and wherewithall to go to the ER on my own accord. He said that most likely saved my life.

   We went thru the whole situation and he sat back and said "you just can't seem to get over this. You are amazing" He said that this is almost unheard of for the fluid buildup to be so great that there is a blow up. He has never seen it before, ever. He has been practicing a good 20 years. He used to practice at the Univ of Chicago so I know he saw some crazy stuff.

   He said he knew I was intelligent and had already researched everything so he wasn't going to beat a dead dog. He said here's our options:
   1. Pray it heals itself
   2. Wait for all the cultures to come back and get an MRA. He wants to see if
   he can visualize the tear in my brain coverings. He also wants a measure
   of how much fluid I have built up in the back of my head.
   3. Go in IMMEDIATELY if I spike a fever, ooze again, or tests come back
   positive for meningitis or some disease like that.

   He was honest, said if I thought the last surgery was rough this is horrific! Essentially he would go back in and undo what he did, re-do what he did, put a drain in my brain, feeding down thru my spine and exit out by my tailbone into a bag. Then I would be required to lie completely flat on my back in the ICU for 5 days. After five days they would scan to see if the "patch" healed and measure my intercranial pressure. If all was "normal" and "healing" he would go back in and remove the drain tube. Then I would go home and heal.

   Oh family, I am devastated. I feel like I have a thousand pounds on my shoulders. I am very, very, emotional right now. I feel like I have burdened this group with WAY too much already. IF it is not too much to ask, pray for me. Right now I am waiting to hear from my insurance on how soon I can get in for tests-he marked URGENT/STAT/ASAP. I just don't know how much more this one girl can take. If there are typos, Wilma keeps walking across the keyboard and I am not gonna go all the way back up and check. You guys have worried about me too long now! Sorry so long to post!

   Posted 2 years ago by mollycat71 #

2. 

   {{{{{{{{{{AMY}}}}}}}}}}} Okay. 1. You, like everyone else here, are NOT a burden and you are NOT burdening us with ANYTHING. 2. WE all LOVE you! 3. Prayers have begun, have not ceased and will not cease! 4. I cannot even begin to understand what you are going through but I am here and will listen. Gosh I wish I could give you a giant hug right now! 5. Whack-bonk stick is down but at the ready just to get to his staff (which I'm sure he is going to whack-bonk himself!). 6. I know you are feeling overwhelmed and rightly so. I know that this group will stand with you no matter what.

   I have a million other things to say but I just needed to say those right now. Hang in there my dear friend. We will see you through.

   Love,

   Lainey

   Posted 2 years ago by Jetta and Boo Boo's Mom #

3. 

   Prayers,white light, whatever you need when you need it coming fast and furious. I am stunned at his office's incompetence... and otherwise at a loss for words.
   You are family, you are not a burden. Wish there was something I/we could do to help.

   Posted 2 years ago by 2 Popoki #

4. 

   I guess it was just the way he said if one little germ gets in thru the whole that could be it. It's just so scary! Thanks Lainey!

   Posted 2 years ago by mollycat71 #

5. 

   Of course it's scary MC. Anyone would be frightened. Can you call FF to come be with you ?!?!? You need someone physically there who cares...

   Posted 2 years ago by 2 Popoki #

6. 

   Prayers, healing energy, and yes whatever else is needed coming to you {{{very gentle hugs}}}

   Posted 2 years ago by AZDEBRA 5/27 & crew #

7. 

   I called him but his phone was shut off. I had talked to him right before I went into the office but now I can't get ahold of him. I was p*ssed at him when he didn't answer. I am just all over the place emotionally right now.

   Posted 2 years ago by mollycat71 #

8. 

   Oh Amy, never think you are a burden, you know that we all care about you and worry right with you! I understand your being afraid and feeling 'beaten' by all you've been through. Please know that we are ALL praying for you and wishing you the very best outcome. Lean on your TDK family. {{{HUGS}}}

   Posted 2 years ago by katthays #

9. 

   ((((MC)))) How horrible! I'm so sorry all this is happening to you.
   The nurses or whatever at your NS's office ought to be fired, not just given a reprimand or whatever by the doctor. Thank God, you knew to get yourself to the ER!!!
   You've got prayers, white light and hugs from me. Don't ever feel bad aking for those - we all want to do all we can for you.

   Posted 2 years ago by GreatDane #

10. 

    Okay it isn't the best of news, but you have answers and with that you can accomplish anything. You know that this is bad, and you have decisions to make. Of course you are going to be emotional and that is okay--that is why you have family and friends. You are not a burden, and I certainly hope you realize that. When will you decide what you are to do next? I would think you need to make a choice about another surgery farely soon. You will be able to deal with this because of the support you will have from people here, FF, and other friends and family. Prayers are continuing. MC you will get through this--there are many people that will pray for you and support you.

    Posted 2 years ago by SoxsMom #

11. 

    (((((amy)))))))

    Posted 2 years ago by Chey #

12. 

    OMG !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
    I am asking a million angels to take care of you and support you right now. and i'm absolutely sure that every TDKer is praying for you, just as I am. You are family and you are loved very very much !!!!!!!!!!!!!!!!!!!!!!

    Posted 2 years ago by CSBM #

13. 

    i forbid you to leave us so lots of healing thoughts for you. (((((hugs)))))

    Posted 2 years ago by Chey #

14. 

    MC, there are some very protected areas in the human body. They have more protective layers and systems than other parts; these areas go to extreme measures to make sure they're well-protected against infection. Think areas like the heart, the brain, inside the placenta... those areas critical for life.

    The reason your NS is concerned is because if those extra barriers are breached, then yes, any potential infection could become very serious indeed. His and your efforts will all work toward preventing any such infection.

    Intercranial pressure is nothing to fiddle-fart around with. It can be a life-threatening complication. When medication proved insufficient to control my mom's intercranial pressure (after a motorcycle accident), a shunt was installed. Between the shunt, the medication, and the extra care afforded in the ICU, her brain injury improved significantly in less than a week - which allowed for her further healing and recovery.

    You and the NS are partners in this, and I'm glad and relieved that you were able to discuss your best options with him. Do not hesitate to call the insurance company daily to get answers; keep a record of contact, who you talked with, and so forth, until you get the necessary pre-authorizations.

    You have all my love and support. You're facing a big challenge, but I have every confidence that you'll come through this all just fine - with the strength and love of all your friends here at TDK.

    Big hugs!!!

    Posted 2 years ago by anncetera2 #

15. 

    He wants the scan TOMORROW. His office chick was like "Does he want this before he sees you again?" He FLEW out of his office and said "TOMORROW! THIS CAN'T WAIT!" She probably pooped in her pants. The cultures will all be back within two weeks. He said we will make the decision Nov 5th (or sooner if I leak again, spike a temp etc)

    Posted 2 years ago by mollycat71 #

16. 

    Do you have a good thermometer? I know that may be a stupid question but well, do you? Oh and you have mail :-)

    Posted 2 years ago by Jetta and Boo Boo's Mom #

17. 

    You are no burden at all, MC. You give so generously of yourself here. You would be experiencing the whackbonk sticks first hand if you didn't let us support you through tough times. :)
    Lots of prayers are being said for you all over the world. You are surrounded by our love.

    Posted 2 years ago by Kitten Whisperer #

18. 

    I used to have a thermometer but it pooped out. He made me buy one along with some triple antibiotic ointment to keep stuff out of my head!

    Posted 2 years ago by mollycat71 #

19. 

    MC, I strongly urge you to ask your doctor how you can best keep in touch with him - if the urgency of the situation is such that you aren't sure of contacting him via his office staff. Explain that if he gives you his phone number, or his head nurse's, you won't abuse his trust in providing it. You'd only use it if you couldn't reach him any other way.

    Hang in there, Amy! I know you're in a stressful situation.

    Posted 2 years ago by anncetera2 #

20. 

    I don't know what to say! I am sending prayers, white light, healing thoughts and lots of love to you. You have gone through so much that I am inspired by your courage, grace and kindness. You could never be a burden to us. You are a shining example! Thanks for being my friend.

    Posted 2 years ago by Puddytat #

21. 

    He wants me to call his "service" directly. They will page him,thus avoiding his office staff. He also mentioned that he is inputting something into the hospital computer so if I show up in the ER they are alerted to call him in immediately. Or I can call his answering service and let them know I am enroute to the hospital. Just to be safe he will have "standing orders" in the computer so they can start working on me until he gets there. I am slowly remembering things bit by bit. I kinda wish FF could have gone with me and listened with a second set of ears.

    Posted 2 years ago by mollycat71 #

22. 

    (((AMY))
    Thank god you were able to express what happened to your NS. Obviously his office staff think they are the boss...anyway, oh my friend. I am so sorry. I would be scared too, anyone would be. I wish I had words to help or to make it all go away but I don't. You are in my every thought and prayer and I pray you will be okay. You are such a great friend, that I refuse to let anything happen to you. We love you and we are all behind you. Don't ever think you are a burden or we have heard enough about your issues...we love you and we worry about you so you better tell us everything. Much love and hugs are coming to Chicago right now!!!!

    Posted 2 years ago by cricketsmama #

23. 

    {{{Amy}}} TDK blankie surrounds and comforts you. It is so powerful that it will comfort all who need it too. I wish I was closer; I would be at your side in a heartbeat. Leela sends healing leg rubs.

    Posted 2 years ago by JoanfromNewJersey #

24. 

    Amy, I am glad that the NS is making sure he will be notified, if need be. You have SO much love and support behind you. You WILL get through this!

    Posted 2 years ago by katthays #

25. 

    You are in my prayers, too Amy. I am so sorry you have to go through all of this. ((((((Amy))))))))

    Posted 2 years ago by Cat talk rules #

26. 

    {{{{{Amy}}}} I felt so sick for you, reading this. Don't you DARE feel like a burden. Like everyone says, we LOVE you. You are being sent all the arohanui (big, big love) in the world from this little corner of the South Pacific and you will be in my thoughts every step of the way. {{{{{Amy}}}}}

    Posted 2 years ago by jcat #

27. 

    MC from now on you must take another person with you to doctors visits. It isn't that you don't listen; it is a matter that it is a lot to take in at one time. I have learned that the hard way. If there isn't anyone to take with you; take a pocket recorder to catch all that is said. This will help you to go back over all that is said, so you can follow through with all that you are to do to take care of yourself. This is a lot to take in. Remember to take a breath, and know you have much support.

    Posted 2 years ago by SoxsMom #

28. 

    i am so sorry to hear this news. i just have been so worried about you... this is a heavy load to bear alone,,, and know you are not alone , you have us and betty and wilma and your FF .. please have FF go with you to you appointments.. please keep us posted on what is going on.. i knew somehting had to be up with that office staff .. this was just to serious to make light of... i'm glad he is going to put them in their place.. please know you are loved and in my prayers , lydia is very worried and is on the phone with betty and wilma .. you are not a burden you are a wonderful person and proud to call you a friend... (((((amy))))))

    Posted 2 years ago by beth #

29. 

    {{{{{{{Amy}}}}}}} You know we all love you. You will never be a burden to us. I gotta go cry now, to keep you from doing so.

    Posted 2 years ago by Vicki #

30. 

    oh i wanted you to know , i have had several patients with shunts that drain the spinal fluid and they lead normal lives.. once in awhile they need a revision ( a redo if it becomes pluged or something) but these days the shunts work great.. and the NS's do awesome work... i don't know if that makes you feel anybetter.. i hope so...

    Posted 2 years ago by beth #

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