Daily Kitten Chat Forum » General Chat

1. 

   Dear TDK Family, my family of "Choice" not chance,

   Wow, it has pained me to know I was going to write this. I have received many kind words and emails from you wondering where I have been. I have been busy but I haven't been 100% honest. I didn't want ANYONE to worry or ANYONE (BUTTERCUP! LOL) to send out the sheriff! My health has been deteriorating. I have been having a lot more trouble with walking, balance, vomiting, and dizziness. I have been receiving Physical Therapy but we had the "no progress, but decline" talk last week. I think in my heart I knew it was coming, it was a matter of time. She said that she felt there was something more going on. I think we both had been avoiding the elephant in the room for too long but it finally moved to the fore front. She thought it was time to talk to my neurosurgeon. I said I would think about it and get ahold of him. She told me not to worry, she had already called for me. Yay! She didn't want me to back out so she made she he was aware. When I called they were ready. And here we go, round 3. We are starting from scratch with all the same old same old tests for Chiari and possible return of symptoms. That is the worst and hardest part of a chronic disease, it can always rear its nasty head.

   I didn't want to worry anyone, I didn't want to sound like I was whining and I didn't want to bring anyone down as I have been pretty depressed and going to a LOT of counseling. I have been scared and worried how many times my body can do this. When I start to have symptoms I wonder, "is this it?" or "am I going to die young?". Ya know all the stuff I have stuffed down inside of me. Everyone has said I have been strong but I think finally it all has started to come out. The counseling has been amazing! Very helpful.

   Currently I am awaiting the ok from my insurance to go ahead with another MRI to see how my brain is/isn't holding up. I am very nervous how that will turn out and what might happen if the results are not good. I do know the NS did say he was surprised I have lasted this long w/o complications. I think in my case its the fear of the 'known'.

   I would like to ask for simply your prayers at this time. I really don't know much besides I am starting all over again. I also have some other funky blood values I have to figure out as well. Some of the wonderful TDK nurses have been helping me on that one. I apologize for staying away, I just needed time to process this all AGAIN! I will really try to stay close to the fold now and update as I can. Promise.

   That being said, my work has profiled me & my CM. Here is Part 1, if you want to read it. It sounds so good, amazing what they can do with just a few appropriately asked questions! Part 2 will be next Weds at the same address.

   http://www.infinityrehab.com/blog/

   Again, thank you for all your love and support! Please keep me in your prayers. Thanks!

   Much love and hugs,
   MC

   Posted 9 months ago by mollycat71 #

2. 

   Praying just as hard as I can MC, much love coming your way sweetie.

   Posted 9 months ago by paulajeanne #

3. 

   Thanks PJ!

   Posted 9 months ago by mollycat71 #

4. 

   I don't pray very often, but I am now. Please, please get better.

   Posted 9 months ago by CheetahBoysmommy #

5. 

   MC, have known you for a long time here. I would be mispoken if I said this didn't bother me. It does, greatly. I may not respond on your posts very often, but know that I think of you often.

   I don't know what the future holds for you right now, but I know you are doing your best to take care of yourself. For that I commend you. I wish I was near you, to visit, to hug you and to look into the face of the woman I have come to know. To hold you in my arms and comfort you and cook you good food.

   None of us knows what will happen in the next round of tests you will have, but know that we are pulling for the best results possible and sending prayers your way.

   I feel you are at your wits end right now, and know that we are all thinking of you and praying for you. You are not abandoned. We have your back, as always.

   Take care, my dearest Amy, I am always with you. Many hugs and much love, Mama Lynn

   Posted 9 months ago by Lynn from PA 6/8 #

6. 

   *prayers*

   Posted 9 months ago by Skyron #

7. 

   Thanks. I know I am at a fork in the road. I called FF and apologized to him for being a b**** in the past. I know I have been and counseling has awakened me to how I have pushed so many away that I love. I am borrowing a "step" from the AA 12 steps per my counselor and reaching out to those I feel I have hurt or abandoned in my fear and illness. So you can imagine his surprise. I said I wasn't looking for anything but just needed to have my say and he could do with it what he wanted. He was shocked and said I was an entirely stronger more inspirational woman than the Amy he knew. (And like you guys he said he thought i was pretty strong before). That is my goal here and with my family/friends. To open communication and not be afraid to say I am scared and I need help. Thank you again.

   Posted 9 months ago by mollycat71 #

8. 

   I love your spirit, MC. You know I am an agnostic but if good thoughts and thinking of you and hoping for you and wanting you to get better SO SO much mean anything at all, then you will come through with flying colours. Kia kaha, be strong, and arohanui, all my love. {{{{CM}}}}

   Posted 9 months ago by jcat #

9. 

   MC, you know that I have always been there for you, and I always will be. Whatever I can offer you in nursing terms I am willing to do. But more than that, I am here as your friend.

   None of us knows what lies ahead. Each day is a gift. Live to the fullest and find joy in the smallest of places. And know that you are surrounded by friends.

   Posted 9 months ago by WillowandWindismom #

10. 

    Amy,my Friend....we are all just human. We can't be strong all of the time. Thank You for being so honest w/us. There isn't a day I don't say a Prayer & am thinking of you. You have alot of Love inside of you & so many good friends here that Love you back just as much.
    In fact,I was double thinking of you yesterday when I had to go to the store. In the parking lot was a very big firetruck. And when I went inside,I saw 3 of the most gorgeous firemen ever!! You were the only one that instantly went thru my mind. I'm sure you'd have melted from all that heat & handsome!!!
    Just takea deep breath & know we all Love You & are just a Loving Hug away.

    Posted 9 months ago by feral #

11. 

    Amy, I want to say that when I met you in person last year in San Antonio, I could see what a wonderful and strong person you are. I understand that you didn't want to worry or upset us but I am glad you told us. I am sending a boatload of prayers, healing white light and positive energy your way. Many hugs too. Please ask Nurse Wilma and Betty to take good care of you.

    Posted 9 months ago by SylMiaFelixsMomma #

12. 

    Thank You for the update Amy, I have noticed you have been away and miss your posts. My prayers that your health is restored and that you are feeling better soon.{{{{{Amy}}}}}

    Posted 9 months ago by krazikat #

13. 

    Oh, Amy, you already know we are all here for you. Sending the TDK healing white light and prayers your way. {{{{{{MC}}}}}}

    Posted 9 months ago by kittymom #

14. 

    Sharing your story with the world is so generous of you, Amy. Your blog article is wonderful. You'll never know how many people you've helped educate on Chiari Malformation. You are a champion and my hero. It's OK to feel scared. Lean on your dear family here all you need to. You are in my prayers!!

    Posted 9 months ago by Kitten Whisperer #

15. 

    {{{Amy & the girls}}}

    Posted 9 months ago by AZDEBRA 5/27 & crew #

16. 

    Keeping you in my prayers and sending tons of healing white light for you Amy. I'm so sorry to hear that you might have to go through this again. I know that you fell into a hole after that first surgery,we were all so worried. At least the Policeman was cute.(lol?) Please ask me for anything that you need and feel free to ask us Nurses here too any questions
    {{{{{{{{{Big,giant,gentle hugs}}}}}}}}}}}}}

    Posted 9 months ago by Buttercup #

17. 

    I am very thankful that you are going back to your neurosurgeon! I really hope that they will be able to return you to the Chiari canter. They specialize in this condition and are best equipped to help you. I am praying that you will not need another surgery, but if that is what is decided that center has some of the very best doctors that specialize in a rarity such as Chiari. As frightened as you may be, you can be very strong--especially when you allow others to help you. My prayers are that you will receive the very best treatment so that you may be restored to the best health possible and be able to enjoy and live a happy life!

    Posted 9 months ago by SoxsMom #

18. 

    dear mollycat i just have to say that you are one brave woman with all that you have been through in the past few years. please God, your doctors and the wonderful caring nurses and all the medical team will get you well. you are an inspiration to so many. i very rarely post, i'm a lurker :), but i just had to let you know how much i admire your courage. God Bless You.

    Posted 9 months ago by poochi7 #

19. 

    Mollycat, you are in my prayers. You are an awesome lady, in the true sense of the word awesome. I am in awe of your courage to live and cope with this awful condition that causes you so much physical and emotional pain. My prayers that the doctors can bring you real, lasting relief so that you may enjoy a very positive, enjoyable quality of life. Be kind to yourself and know that you are cherished and respected by your TDK family.

    Posted 9 months ago by Marnet #

20. 

    Sending many prayers out to you, MC.

    Posted 9 months ago by Dee #

21. 

    mega prayers and hugs to you...

    i wish you all the best...

    Posted 9 months ago by CSBM #

22. 

    hugs and prayers

    Posted 9 months ago by Arcalian #

23. 

    As KW said 'you are a champion and my hero'. I've never come across anyone as strong and inspirational as you, Amy. You're our Miracle Kid. Sending you lots of love, positive energy and healing white light. Thank you for sharing with us, your family. Kia kaha and arohanui.

    Posted 9 months ago by KapitiKats in NZ #

24. 

    Its ok if you aren't religious! I would take white light, good vibes, good whatever. I love all of you I really do! You rock!

    Posted 9 months ago by mollycat71 #

25. 

    Sending heaps of Positive Vibes and a big but gentle {{{{hug}}}} for our Miracle Kid.

    Posted 9 months ago by Moonshadow_NZ #

26. 

    Oh no, Amy!!!!! This sucks! So sorry you're going through this again!You've got my prayers, white light, thoughts, virtual hugs - you name it!
    I really wish we had someone closer to you who could be there for you!

    Posted 9 months ago by GD #

27. 

    ..... you have my continued prayers and white lights....... much support and big but gentle ((((((hugs))))))

    Posted 9 months ago by AV #

28. 

    Amy, oh my friend. I feel your fear and your strength as I read what you wrote. I wish I were near so I can be there for you, hug you and make everything okay. You have everything I can give, prayers, white light, positive vibes, healing thoughts, everything!! It's okay to be scared..anyone would be, but hopefully somehow the NS can help. We love you and if you need ANYTHING..please let us know...we will find a way. Many hugs to you my sweet friend.

    Posted 9 months ago by cricketsmama #

29. 

    Sending much TDK white light to you Amy and you are in my prayes too! {{MC}}

    Posted 9 months ago by SammyandOliversmama #

30. 

    Amy, I'm honoured to have met you and call you my friend. Andy often asks after my "friend with the zipped head"!!! - which I know will make you laugh :o)

    You are handling yourself and your condition with grace, courage and heart warming good humour. I'm sure you have good days and bad days, and I know how easy it is to fake good on an online forum - but if anyone has earned the right to moan, whinge, offload - whatever you want to call it - it's you.

    BIG {{hugs}}. Many prayers. And lots of love xx

    Posted 9 months ago by MadcatwomanintheUK #

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