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1. 

   This is so EXCITING, I could pop! For those of you who don't know I have a rare disorder called Chiari malformation. My cerebellum "herniated" into my spinal column and I have had two major brain surgeries amongst other problems. There has been little advancement in the knowledge of this disease. I found this article tonight about a new surgery in which surgeons repair the "hindbrain herniation" in the uterus before the baby is born!" What a fantastic idea, fix the problem before the baby is born and help the baby from suffering horrible symptoms like I have had!

   http://www.cnn.com/2011/HEALTH/02/09/surgery.spina.bifada/index.html?iphonefb

   Posted 2 years ago by mollycat71 #

2. 

   :)

   Posted 2 years ago by AZDEBRA 5/27 & crew #

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   oh cool. I did not know this disorder was related to Spina bifada. From what I've read and seen on documentaries, babies who have this surgery seem to have much better quality of life and fewer complications. I hope it becomes standard practice in the future (covered by insurance, more surgeons, etc)

   Posted 2 years ago by ladysky61 #

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   way cool!

   Posted 2 years ago by paulajeanne #

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   Very, very encouraging, MC. Maybe someday Chiari Malformation will be one of those "long time ago" disorders. Also interesting at the end of the article was this:

   "The exact cause of spina bifida is unknown, but experts agree women of childbearing age can reduce the risk of their child getting this disease by getting enough folic acid (at least 400 micrograms) from leafy green vegetables, fruits, beans or supplements and vitamin B12 (2.8 micrograms), found in meat and eggs."

   Posted 2 years ago by 12PAWZinFL #

6. 

   Yes its considered a "high level" type of spina bifida. Or a "complete" spina bifida. It develops as the neural tube is developing. In SB the tube generally doesn't close entirely. In CM it closes but not correctly. I think they are onto something!!!

   Posted 2 years ago by mollycat71 #

7. 

   Oh I'm so happy for you, to hear about this. I really hope they can start doing this it would be such an advancment and would be great for other babies not to deal with this. I'm sorry that you do MC, you're such a trooper and great person. :)

   Posted 2 years ago by Duchess&&Gabriel #

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   MC, What fantastic news for the future!

   Posted 2 years ago by nawlins catmom #

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   That is wonderful news! I am so happy for the babies who are diagnosed with CM and can be helped in utero but sorry MC that you have to suffer with it.

   Posted 2 years ago by cricketsmama #

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    That IS wonderful news, MC! I'm so happy to see this advancement. :-)

    Posted 2 years ago by Jetta and Boo Boo's Mom #

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    Great news, MC. I hope many more discoveries are made to improve the lives of those who have CM. You are one of my heroes!

    Posted 2 years ago by Kitten Whisperer #

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    bump

    Posted 2 years ago by mollycat71 #

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    Wow...amazing news with encouraging results.

    Posted 2 years ago by jeankit #

14. 

    That is such great news, MC!!!!

    Posted 2 years ago by katthays #

15. 

    Awesome! The more doctor's can correct before birth the healthier those affected will be!

    Posted 2 years ago by KYKAT 12 23 #

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